Trusted Resources For Your Condition
Curated, human-reviewed information and links for rheumatological, autoimmune and neurological conditions, and their care-partners.
Trusted resources for your condition
Find your condition below. Every resource is reviewed before it is listed.
Crohn's Disease
- Crohn's & Colitis Foundation
Education, support programs, local chapters, and resources.
- NIDDK
Clear, research-based patient information on Crohn's disease.
- MedlinePlus / National Library of Medicine
Trusted health information and links to clinical resources.
- American College of Gastroenterology
Patient education from digestive-health specialists.
- CDC
General information on inflammatory bowel disease.
Dementia
- Alzheimer's Association
Education, local programs, support groups, care consultations, and a free 24/7 Helpline at 800-272-3900.
- National Institute on Aging: Alzheimer's and Dementia
Trusted information about symptoms, diagnosis, treatment, caregiving, and clinical research.
- Alzheimers.gov
Federal information for people living with dementia, families, care partners, and professionals.
- Eldercare Locator
Connects older adults and families with local services, including transportation, meals, respite care, home support, and legal assistance. Call 800-677-1116.
- Family Caregiver Alliance
Practical guidance, education, support, and care-planning resources for family care partners.
- Lewy Body Dementia Association
Information and support specifically for people affected by Lewy body dementia.
- Association for Frontotemporal Degeneration
Education, support, and resources for people affected by frontotemporal dementia.
- Florida Alzheimer's Disease Initiative
Respite care, caregiver training, counseling, support groups, and access to Florida's Memory Disorder Clinics.
- Florida Elder Helpline
Connects Florida residents with local aging and caregiver services. Call 1-800-963-5337.
Inflammatory Bowel Disease (IBD)
- Crohn's & Colitis Foundation
Education, support programs, local chapters, and resources for patients and care-partners.
- Crohn's & Colitis Foundation: IBD Help Center
Free help centre staffed by information specialists. Phone support on 1-888-694-8872.
- Mayo Clinic: IBD Overview
Overview of symptoms, causes, diagnosis, and treatment.
- NIDDK: National Institute of Diabetes and Digestive and Kidney Diseases
Research-based patient information on digestive diseases, including Crohn's and ulcerative colitis.
- MedlinePlus, U.S. National Library of Medicine
Plain-language health information and links to clinical resources.
- American Gastroenterological Association (AGA)
Patient information from digestive-health specialists.
- American College of Gastroenterology (ACG): Patient Resources
Patient education from digestive-health specialists.
- IBD Support Foundation
Patient support and education for people living with IBD.
- MyCrohnsAndColitisTeam
Online patient community for people living with Crohn's and colitis.
- Girls With Guts
Community for women living with IBD and ostomies.
Lupus (SLE)
- Lupus Foundation of America
The gold standard. Has everything: diagnosis guides, treatment info, medication trackers, a free self-care app (SELF), and LupusConnect™ online community.
- LupusConnect™
Online peer community for sharing experiences and emotional support.
- SELF App (Strategies to Embrace Living with Lupus Fearlessly)
Free LFA app with symptom tracking, medication reminders, and personalized coaching.
- Molly's Fund Fighting Lupus
Patient support, advocacy, and education.
- Lupus Research Alliance
Research news and clinical trial information. Formed by the merger of the Alliance for Lupus Research and the S.L.E. Lupus Foundation.
- American College of Rheumatology, Lupus
Clinical info written for patients.
Migraine
Patient education and advocacy
- American Migraine Foundation
Patient guides, a symptom and treatment resource library, a "Find a Doctor" tool, and a 38,000+ member Move Against Migraine Facebook support group.
- National Headache Foundation
Nonprofit founded in 1970, with education on migraine and headache types, getting-help resources, patient assistance program information, and a certified-provider finder.
- Miles for Migraine
Free virtual support groups for adults, teens aged 13 to 19, and parent-to-parent, plus advocacy training and community programs.
- Chronic Migraine Awareness (CMA)
Virtual support groups, including a dedicated Care Partners community, and private online communities.
Financial and practical assistance
- National Headache Foundation, Patient Assistance Programs
Directory of programs to help afford migraine medications and devices.
- NORD, National Organization for Rare Disorders
Broader rare and chronic disease financial assistance directory, useful for complex or treatment-resistant migraine cases.
Community and tools
- The Migraine Network
Free app with a private attack tracker, a peer community, and plain-language guides.
MOGAD
- The Sumaira Foundation
Education, advocacy, and patient support for MOGAD and NMOSD.
- Siegel Rare Neuroimmune Association (SRNA)
Support, education, and a medical professional network for rare neuroimmune disorders.
- The MOG Project
Patient-led education and advocacy focused specifically on MOG antibody disease.
- NORD: National Organization for Rare Disorders, MOGAD
Disease overview plus financial assistance and caregiver resources.
Multiple Sclerosis (MS)
MS is where our work began. Everything MS lives on MS Views and News, our parent organization.
- New to MS
First steps for anyone recently diagnosed, or caring for someone who was.
- MS Resources
The full resource library, including the MS Resources Guide.
- Ongoing Support
Blog, resources, YouTube channel, and the MS community chat.
- MS FAQ
Answers to the questions people ask most often about MS.
- Virtual Events
Live and recorded MS programs you can join from home.
- In-Person Events
MS seminars and programs held in communities across the country.
- Join the MS Community
Their confidential mailing list and the MS Beacon e-Newsletter.
Myasthenia Gravis (MG)
- Myasthenia Gravis Foundation of America (MGFA)
Education, advocacy, and patient support for people living with MG.
- MGFA: Support Groups & Care Partner Resources
Support groups and materials built for care-partners and families.
- Mayo Clinic: Myasthenia Gravis Overview
Overview of symptoms, causes, diagnosis, and treatment.
- NINDS: National Institute of Neurological Disorders and Stroke
NIH information on MG, including current research.
- MedlinePlus, U.S. National Library of Medicine
Plain-language health information and links to clinical resources.
- NORD: National Organization for Rare Disorders, MG
Disease overview plus financial assistance and caregiver resources.
- Conquer Myasthenia Gravis
Patient education, support groups, and community programs.
NMOSD
Patient education, advocacy and specialist directories
- Patient Health Alliance
Successor to the Guthy-Jackson Charitable Foundation. NMOSD and MOGAD advocacy, education, support groups, and an NMOSD specialist locator.
- Guthy-Jackson Charitable Foundation: NMO Resources
Patient guide, doctor directory of NMO-experienced physicians, and support group listings.
- Siegel Rare Neuroimmune Association (SRNA)
Support, education, and a medical professional network for NMOSD, MOG antibody disease, and other rare neuroimmune disorders.
- NORD: National Organization for Rare Disorders, NMOSD
Disease overview plus financial assistance and caregiver resources.
Financial and practical assistance
- The Assistance Fund (TAF)
Help with treatment costs.
- Patient Advocate Foundation
Case management and financial aid.
- Good Days
Co-pay and treatment assistance.
Related organizations
- The MOG Project
For the closely related MOG antibody disease (MOGAD).
Parkinson's Disease
- Parkinson's Foundation
The largest Parkinson's patient organization in the U.S. Offers a Helpline (1-800-4PD-INFO), care programs, “Living with Parkinson's” guides, and support groups.
- Michael J. Fox Foundation for Parkinson's Research
Offers the “Parkinson's 360” resource hub and free downloadable “Living Well With Parkinson's” guides, plus “Ask the MD” expert Q&A content.
- American Parkinson Disease Association (APDA)
Nationwide network of local chapters offering education, support groups, and specialized resources (including a Spanish-language site).
- Davis Phinney Foundation
Focused specifically on helping people “live well today” with Parkinson's; known for the “Every Victory Counts” manual and wellness-focused programming.
- National Institute of Neurological Disorders and Stroke (NINDS / NIH)
Government-backed, medically vetted overview of Parkinson's disease, symptoms, causes, and research.
- Parkinson's Foundation FAQ page
Direct answers to the most common patient and caregiver questions.
Polymyalgia Rheumatica (PMR)
- Arthritis Foundation
Patient education on PMR, its symptoms, and living with inflammatory conditions.
- American College of Rheumatology (ACR)
Clinical information on PMR written for patients.
- Mayo Clinic: PMR Overview
Overview of symptoms, causes, diagnosis, and treatment.
- NIAMS
NIH information on PMR and giant cell arteritis, including current research.
- MedlinePlus / National Library of Medicine
Plain-language health information and links to clinical resources.
- Vasculitis Foundation
Covers giant cell arteritis, which is closely associated with PMR.
Sjögren's Disease
- Sjögren's Foundation
Patient education, support, news, advocacy, and downloadable materials.
- Sjögren's Foundation: Brochures & Resource Sheets
Practical guides on dry eyes, dry mouth, fatigue, dental care, brain fog, lung involvement, symptom tracking, and more.
- NIH MedlinePlus: Sjögren's Syndrome
Plain-language overview of symptoms, diagnosis, treatment, and finding expert care.
- National Institute of Dental and Craniofacial Research
Especially helpful on dry mouth, oral health, cavities, and treatment options.
- NIAMS: Sjögren's Disease
NIH information on symptoms, diagnosis, treatment, and current research.
- American College of Rheumatology: Sjögren's Syndrome
Information on rheumatology care and management.
More conditions coming
We are adding reviewed resources for the last condition we cover:
- Rheumatoid Arthritis (RA)
Living with one of these? Contact us and we will point you to trusted information for your condition.
Resources matched to your diagnosis
Join our community and we will point you to the resources that fit your condition.
Resources on this site are for education only and are not a substitute for your doctor's medical advice. Consult a medical professional about your health.